She wasn't supposed to live past age 8. Now she's fighting to help oth… CNN 0 95 08.10 00:03 https://www.youtube.com/watch?v=v5CAHYbGcUY + 114 https://www.youtube.com/feeds/videos.xml?channel_id=UCupvZG-5ko_eiXAup… + 14 She wasn't supposed to live past age 8. Now she's fighting to help others with this deadly disease