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She wasn't supposed to live past age 8. Now she's fighting to help oth…

CNN 0 93 08.10 00:03

https://www.youtube.com/watch?v=v5CAHYbGcUY + 114 https://www.youtube.com/feeds/videos.xml?channel_id=UCupvZG-5ko_eiXAup… + 14

She wasn't supposed to live past age 8. Now she's fighting to help others with this deadly disease

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